The ethics of biomedical big data / editors Brent Daniel Mittelstadt, Luciano Floridi.

Contributor(s): Mittelstadt, Brent Daniel [edt, ctb] | Floridi, Luciano [edt, ctb] | Vayena, Effy [ctb] | Gasser, Urs [ctb] | Richterich, Annika [ctb] | Hoeyer, Klaus [ctb] | Hockings, Edward [ctb] | Hallinan, Dara [ctb] | De Hert, Paul [ctb] | Goodman, Bryce [ctb] | Woolley, J. Patrick [ctb] | Christen, Markus [ctb] | Domingo-Ferrer, Josep [ctb] | Draganski, Bogdan [ctb] | Spranger, Tade Matthias [ctb] | Walter, Henrik [ctb] | Woods, Simon [ctb] | Vassilakopoulou, Polyxeni [ctb] | Skorve, Espen [ctb] | Aanestad, Margunn [ctb] | Tupasela, Aaro [ctb] | Liede, Sandra [ctb] | Boddington, Paula [ctb] | Schickhardt, Christoph [ctb] | Hosley, Nelson [ctb] | Winkler, Eva C [ctb] | Nicholls, Stuart G [ctb] | Langan, Sinéad M | Benchimol, Eric I [ctb] | Tractenberg, Rochelle E [ctb] | Hogle, Linda F [ctb] | Mills, Peter [ctb]
Material type: TextTextLanguage: English Series: (Law, governance and technology series ; vol. 29)Publisher: Basel : Springer, cop. 2016Description: 480 str. ; graf. prikazi, 25 strISBN: 9783319335230Subject(s): veliki podaci | biomedicina | medicina | digitalna etika
Contents:
Sadrži: Strictly biomedical? Sketching the ethics of big data ecosystem in biomedicine / Effy Vayena, Urs Gasser ; Using transactional big data for epidemiological surveillance : Google flu trends and ethical implications of 'infodemiology' / Annika Richterich ; Denmark at a crossroad? Intensified data sourcing in a research radical country / Klaus Hoeyer ; A critical examination of policy-developments in information governance and the biosciences / Edward Hockings ; Many have it wrong : samples do contain personal data : the Data protection regulation as a superior framework to protect donor interests in biobanking and genomic research / Dara Hallinan, Paul De Hert ; What's wrong with the right to genetic privacy : beyond exceptionalism, parochialism and adventitious ethics / Bryce Goodman ; How data are transforming the landscape of biomedical ethics : the need for ELSI metadata on consent / J. Patrick Woolley ; On the compatibility of big data driven research and informed consent : the example of the human brain project / Markus Christen, Josep Domingo-Ferrer, Bogdan Draganski, Tade Spranger, Henrik Walter ; Big data governance : solidarity and the patient voice / Simon Woods ; Premises for clinical genetics data governance : grappling with diverse value logics / Polyxeni Vassilakopoulou, Espen Skorve, Margunn Aanestad ; State responsibility and accountability in managing big data in biobank research : tensions and challenges in the right of access to data / Aaro Tupasela, Sandra Liede ; Big data, small talk : lessons from the ethical practices of interpersonal communication for the management of biomedical big data / Paula Boddington ; Researcher's duty to share pre-publication data : from the prima facie duty to practice / Christoph Schickhardt, Nelson Hosley, Eva C. Winkler ; Reporting and transparency and big data : the nexus of ethics and methodology / Stuart G. Nicholls, Sinéad M. Langan, Eric I. Benchimol ; Creating a culture of ethics in biomedical big data : adapting 'Guidelines for professional practice' to promote ethical use and research practice / Rochelle E. Tractenberg ; The ethics and politics of infrastructures : creating the conditions of possibility for big data in medicine / Linda F. Hogle ; Ethical reuse of data from health care : data, persons and interests / Peter Mills ; The ethics of big data : current and foreseeable issues in biomedical contexts / Brent Daniel Mittelstadt, Luciano Floridi
List(s) this item appears in: Spajanje
Tags from this library: No tags from this library for this title. Log in to add tags.
    Average rating: 0.0 (0 votes)
Item type Current location Collection Call number Status Date due Barcode
Knjige Knjige Priručna istraživačka knjižnica Znanstvenog centra izvrsnosti za integrativnu bioetiku
Centar za integrativnu bioetiku, Zagreb
Priručna istraživačka knjižnica OB-Mittelstadt, B. D.-e (Browse shelf) Available 1012183

Bibliografske bilješke uz tekst.

Sadrži: Strictly biomedical? Sketching the ethics of big data ecosystem in biomedicine / Effy Vayena, Urs Gasser ; Using transactional big data for epidemiological surveillance : Google flu trends and ethical implications of 'infodemiology' / Annika Richterich ; Denmark at a crossroad? Intensified data sourcing in a research radical country / Klaus Hoeyer ; A critical examination of policy-developments in information governance and the biosciences / Edward Hockings ; Many have it wrong : samples do contain personal data : the Data protection regulation as a superior framework to protect donor interests in biobanking and genomic research / Dara Hallinan, Paul De Hert ; What's wrong with the right to genetic privacy : beyond exceptionalism, parochialism and adventitious ethics / Bryce Goodman ; How data are transforming the landscape of biomedical ethics : the need for ELSI metadata on consent / J. Patrick Woolley ; On the compatibility of big data driven research and informed consent : the example of the human brain project / Markus Christen, Josep Domingo-Ferrer, Bogdan Draganski, Tade Spranger, Henrik Walter ; Big data governance : solidarity and the patient voice / Simon Woods ; Premises for clinical genetics data governance : grappling with diverse value logics / Polyxeni Vassilakopoulou, Espen Skorve, Margunn Aanestad ; State responsibility and accountability in managing big data in biobank research : tensions and challenges in the right of access to data / Aaro Tupasela, Sandra Liede ; Big data, small talk : lessons from the ethical practices of interpersonal communication for the management of biomedical big data / Paula Boddington ; Researcher's duty to share pre-publication data : from the prima facie duty to practice / Christoph Schickhardt, Nelson Hosley, Eva C. Winkler ; Reporting and transparency and big data : the nexus of ethics and methodology / Stuart G. Nicholls, Sinéad M. Langan, Eric I. Benchimol ; Creating a culture of ethics in biomedical big data : adapting 'Guidelines for professional practice' to promote ethical use and research practice / Rochelle E. Tractenberg ; The ethics and politics of infrastructures : creating the conditions of possibility for big data in medicine / Linda F. Hogle ; Ethical reuse of data from health care : data, persons and interests / Peter Mills ; The ethics of big data : current and foreseeable issues in biomedical contexts / Brent Daniel Mittelstadt, Luciano Floridi

There are no comments for this item.

to post a comment.

Powered by Koha